Sarah's Mom Has Strong Words For Government - KMSP-TV

Sarah's Mom Has Strong Words For Government

Posted: Updated:
PHILADELPHIA -

We have an update to the heartbreaking story of a little girl in desperate need of a lung transplant.

We have been following this story for you for the past week, showing a mother's race against time and red tape that has reached all the way to Washington, D.C.

Tonight, we have strong words from Sarah's mom to the government.

"She's a mother. She's a grandmother. How can she say it's OK for my child to die?" asked a tearful Janet Murnaghan.

She's talking about U.S. Health and Human Services Secretary Kathleen Sebelius, who two days ago instructed the government-contracted donor organization to review its policy that prevents Sarah Murnaghan from being eligible for an adult lung transplant.

"This case really, you know, kind of touches your heart strings," said Associate Secretary of Health and Human Services George Sheldon. "And so I think it's one of those that's gut-wrenching for the Department of Health and Human Services."

But Sarah's mom says the government is moving way too slowly. She believes Sebelius can step in and do more than order a review. She wants action now, before Sarah's bout with cystic fibrosis claims her life.

"She is legally in a position to save Sarah's life, and she's choosing not to," Janet Murnaghan said. "She is stating that there needs to be change and something is wrong with the system but that she's not going to save Sarah."

Here is the problem: At Sarah's age and size, her body may accept an adult-sized lung, although doctors say the procedure may be more difficult.

Donor regulations say, however, that if you're under 12 you must wait for a child donor, not an adult.

Sarah is 10.

"I have to focus my fight for Sarah because Sarah doesn't time," Janet Murnaghan said.

With the clock ticking down, the desperate mom is asking the public to give the gift of life – and designate it specifically to Sarah.

"That is the only thing that can go above this law, if a family who's giving the gift of life says, 'But for her lungs we want them to go to Sarah,'" the tearful mother said.

  • Sarah's FightMore>>

  • Ya Gotta Try This Tasting

    Ya Gotta Try This Tasting

    Tuesday, August 26 2014 11:27 AM EDT2014-08-26 15:27:40 GMT
    Join FOX 29's Mike Jerrick and the Good Day Philadelphia team for a tasty night of yummy treats benefiting local youth.You've all seen Mike's weekly "Ya Gotta Try This" segments on Good Day Philadelphia, where he visits local restaurants and eating establishments to try their signature, and sometimes, unusual, dishes. Now you have the chance to do the same at the "Ya Gotta Try This" Tasting, Thursday, October 2nd, 6:30 to 9:30, at the Independence Visitor Center, One North Independence Mall W...
    Join FOX 29's Mike Jerrick and the Good Day Philadelphia team for a tasty night of yummy treats benefiting local youth.You've all seen Mike's weekly "Ya Gotta Try This" segments on Good Day Philadelphia, where he visits local restaurants and eating establishments to try their signature, and sometimes, unusual, dishes. Now you have the chance to do the same at the "Ya Gotta Try This" Tasting, Thursday, October 2nd, 6:30 to 9:30, at the Independence Visitor Center, One North Independence Mall W...
  • Sarah Murnaghan Leaves CHOP, Arrives Home!

    Sarah Murnaghan Leaves CHOP, Arrives Home!

    Wednesday, December 18 2013 12:12 PM EST2013-12-18 17:12:02 GMT
    After several months in the hospital and agonizing surgeries, 11-year-old Sarah Murnaghan is finally going home today.
    After several months in the hospital and agonizing surgeries, 11-year-old Sarah Murnaghan is finally home!
  • Sarah Murnaghan Breaths On Her Own

    Sarah Murnaghan Breaths On Her Own

    Tuesday, September 17 2013 8:36 PM EDT2013-09-18 00:36:11 GMT
    In the video, Sarah's aunt asks Sarah, "Are you off your machines?" To which Sarah eventually responds, "I feel fine."
    In the video, Sarah's aunt asks Sarah, "Are you off your machines?" To which Sarah eventually responds, "I feel fine."
  • FOX 29 Health FeaturesMore>>

  • Ya Gotta Try This Tasting

    Ya Gotta Try This Tasting

    Tuesday, August 26 2014 11:27 AM EDT2014-08-26 15:27:40 GMT
    Join FOX 29's Mike Jerrick and the Good Day Philadelphia team for a tasty night of yummy treats benefiting local youth.You've all seen Mike's weekly "Ya Gotta Try This" segments on Good Day Philadelphia, where he visits local restaurants and eating establishments to try their signature, and sometimes, unusual, dishes. Now you have the chance to do the same at the "Ya Gotta Try This" Tasting, Thursday, October 2nd, 6:30 to 9:30, at the Independence Visitor Center, One North Independence Mall W...
    Join FOX 29's Mike Jerrick and the Good Day Philadelphia team for a tasty night of yummy treats benefiting local youth.You've all seen Mike's weekly "Ya Gotta Try This" segments on Good Day Philadelphia, where he visits local restaurants and eating establishments to try their signature, and sometimes, unusual, dishes. Now you have the chance to do the same at the "Ya Gotta Try This" Tasting, Thursday, October 2nd, 6:30 to 9:30, at the Independence Visitor Center, One North Independence Mall W...
  • Dr. Mike: Canned Tuna Warning For Pregnant Women

    Dr. Mike: Canned Tuna Warning For Pregnant Women

    Friday, August 22 2014 9:30 AM EDT2014-08-22 13:30:23 GMT

    Expectant mothers, think it's OK to eat canned tuna? Well, think again! Dr. Mike explains why it may actually be more dangerous than fresh fish.

    Expectant mothers, think it's OK to eat canned tuna? Well, think again! Dr. Mike explains why it may actually be more dangerous than fresh fish.


  • Baby That Needs Specialized Formula Receives Overwhelming Support

    Baby That Needs Specialized Formula Receives Overwhelming Support

    Thursday, August 14 2014 9:59 PM EDT2014-08-15 01:59:13 GMT
    Insurance policies have rules governing what's covered and what's not. Generally, they make sense. The rules are designed to prevent unreasonable costs from being passed along to the insurer, and by extension to other insurance customers. But listen to Sheree Kober's story. 
    Insurance policies have rules governing what's covered and what's not. Generally, they make sense. The rules are designed to prevent unreasonable costs from being passed along to the insurer, and by extension to other insurance customers. But listen to Sheree Kober's story. 

  • Local NewsMore>>

  • Vigil Held For Teen Killed On North Philadelphia Basketball Court

    Vigil Held For Teen Killed On North Philadelphia Basketball Court

    Thursday, August 28 2014 12:48 AM EDT2014-08-28 04:48:59 GMT
    A shooting on a North Philadelphia basketball court has left a 17-year-old man dead.
    A shooting on a North Philadelphia basketball court has left a 17-year-old man dead.
  • Swedesboro Liquor Store Owner Accused Of Racist Comments

    Local Liquor Store Owner Accused Of Racist Comments

    Thursday, August 28 2014 12:31 AM EDT2014-08-28 04:31:44 GMT
    A quiet little liquor store in Gloucester County is stirring up a big controversy. The store's owner is under fire accused of making racist comments to customers.
    A quiet little liquor store in Gloucester County is stirring up a big controversy. The store's owner is under fire accused of making racist comments to customers.
  • Police: Man Kills Wife At Hospital; Son Found Dead In Home

    Police: Man Kills Wife At Hospital; Son Found Dead In Home

    Thursday, August 28 2014 12:28 AM EDT2014-08-28 04:28:18 GMT
    Authorities say a man shot and killed his wife, then shot himself at a New Jersey hospital around 9:25 a.m. on Wednesday morning.
    Authorities say a man shot and killed his wife, then shot himself at a New Jersey hospital around 9:25 a.m. on Wednesday morning.
Powered by WorldNow

KMSP-TV
11358 Viking Drive
Eden Prairie, MN 55344

Phone: (952) 944-9999
Fax: (952) 942-0455

Didn't find what you were looking for?
All content © Copyright 2000 - 2014 Fox Television Stations, Inc. and Worldnow. All Rights Reserved.
Privacy Policy | New Terms of Service What's new | Ad Choices